Funded by a Healthwatch Sheffield #SpeakUp Grant, Sheffield ME and Fibromyalgia Group are conducting a survey and focus groups of people who experience ME/CFS and Fibromyalgia in order to:-
- Improve access to health & social care support for people living with the conditions
- Monitor and promote the implementation of the groundbreaking 2021 NICE guideline for ME/CFS
They explain “This year is Sheffield ME & Fibromyalgia Group’s 20th anniversary of representing and supporting people in the Sheffield region. The chronic invisible illnesses we support are common, but poorly researched and without a cure. They can be disabling and greatly isolating for sufferers: 25% of people with ME/CFS are severely ill, leaving them housebound or bedbound. So ensuring access to health and social care is a driving priority for our charity.”
You can find full details here.