Disability Sheffield
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Blog Archive

  • Digital Data Sharing Date Delayed

    Digital Data Sharing Date Delayed

    10 June 2021

    A scheme to allow GPs’ information on their patients to be collated in a central database which could be accessed by third parties such as pharmaceutical firms and researchers has been delayed after pressure until September 1st. However there is still anger that people will need to ‘opt out’ and that this has not been advertised widely.

    FULL ARTICLE

  • Let's Talk about Health Data Sharing Workshop

    Let's Talk about Health Data Sharing Workshop

    05 May 2021

    Tools for Life is a research project which aims to develop tools to empower people to make informed decisions about sharing their patient data for research. Members of the public, patients, and health professionals are being invited to take part in a deliberation day on Thursday 27th May.To say thank all participants will receive a £40 Amazon voucher at the end of the workshop.

    FULL ARTICLE

  • Tools for Life Research Project Seeking Views on Patient Data

    Tools for Life Research Project Seeking Views on Patient Data

    27 May 2020

    Sheffield University is inviting members of the public, patients, and health professionals to take part in interviews which aim to explore what people think about sharing patient data/medical records for purposes beyond their individual care, e.g. for research to improve treatments or healthcare services. The research is being managed by the Information School at the University who are looking for people aged 25-44 or 65 plus from a range of different backgrounds to take part. To say thank you for your time, all participants will receive a £30 Amazon voucher which will be emailed to you after the interview.

    FULL ARTICLE

  • We need your Permission to Continue to Send you our News Bulletins.

    23 April 2018

    If you’re on our mailing list we hope you enjoy receiving and reading our weekly news bulletins about local and national disability news and events and thank you for taking an interest in our work. Please be aware that on May 25th, changes to data protection will come into effect, which means that we are required to ask you to resubscribe if you wish to continue to receive our news bulletins. It’ll only take 2 minutes….

    FULL ARTICLE
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